Top Organizations to Find Support for Managing Psoriatic Arthritis

Get access to resources that make it easier to live your best life with this type of arthritis.
Top Organizations to Find Support for Managing Psoriatic Arthritis
Getty Images
Anyone can develop psoriatic arthritis, but it’s most common in people who already have psoriasis, affecting about 30 percent of people with the skin condition.

Whether you’re managing just psoriatic arthritis or both psoriatic arthritis and psoriasis, it helps to have an arsenal of information at your fingertips. For advice about which medications to try, news about the latest treatment options, or support groups (both online and in person), these resources are at your service.

Arthritis Foundation

The Arthritis Foundation has been at the forefront of arthritis care since 1948. The organization’s ultimate goal is to cure all forms of arthritis, including psoriatic arthritis. But they also offer a variety of educational resources that can help people manage the condition, all the while promoting self-advocacy and empowerment.

?Some of the most helpful tools they provide include:
  • An online doctor finder
  • The Live Yes! With Arthritis Podcast
  • A series of expert-led webinars
  • Arthritis-friendly product recommendations (i.e., Ease of Use–certified products and gadgets)

The Arthritis Foundation also encourages people with arthritis to participate in advocacy initiatives that can improve access to arthritis care at both the state and federal levels. They also host a number of in-person and virtual events to raise money to advance arthritis research and bring people with arthritis together.

Additionally, the Arthritis Foundation is home to the Psoriatic Arthritis Connect Group, inviting people with the condition to connect with others who understand what they’re going through.

You can stay connected with the Arthritis Foundation on:

  • Facebook
  • Instagram
  • X

American College of Rheumatology (ACR)

Founded in 1934, the ACR is the leading not-for-profit professional association that supports over 9,600 rheumatology experts, including those who both treat and study psoriatic arthritis. Together, these physicians and scientists pursue innovative work and provide quality care to people with psoriatic arthritis and other forms of arthritis.

The ACR also offers a variety of patient resources, including information about psoriatic arthritis and an online Rheumatology Provider Directory.

In September 2016, the ACR launched the first Rheumatic Disease Awareness Month. Its aim is to spread awareness about rheumatic diseases, including psoriatic arthritis, as well as the personal and economic impact the conditions have on people.

The ACR also encourages people with arthritis to take action by sending messages to government representatives who are responsible for making policy decisions that may affect daily life. By sharing your personal stories about treatment access or cost issues, you can help the ACR solve policy problems that have an impact on people with psoriatic arthritis and other rheumatic diseases.

You can connect with the ACR through:

  • Facebook
  • Instagram
  • X?
  • YouTube

CreakyJoints

CreakyJoints is part of the Global Healthy Living Foundation (GHLF), which is a nonprofit advocacy group that has been working since 1999 to help improve quality of life for people living with chronic diseases such as psoriatic arthritis. CreakyJoints is a community of thousands of people across the United States who are living with various forms of arthritis and is one of the GHLF’s biggest networks.

CreakyJoints offers a variety of important educational resources for people with psoriatic arthritis, including information on:

  • Financial assistance for treatment
  • Health insurance issues
  • Family planning and parenting support
  • Joint replacements
  • Clinical trials

They also offer a series of webinars and a podcast network to share information within the community. Additionally, they collect and share patient-submitted stories on what life with arthritis is really like. You can even sign up for their Psoriatic Arthritis Wellness newsletter series, which is packed with information on how to ease psoriatic arthritis symptoms.

As part of the GHLF, CreakyJoints also takes part in research and advocacy efforts to educate the community about chronic diseases, as well as how to improve access to care.

You can download their free app, PatientSpot, to better track your symptoms and stay on top of your treatment regimen. The app can also share data with your doctor, which can help you both make more informed decisions about your care.

Stay connected with CreakyJoints through:

  • Facebook
  • X
  • YouTube

National Psoriasis Foundation (NPF)

The NPF is a leading nonprofit organization and patient advocacy group for people living with psoriasis or psoriatic arthritis. Since 1967, the NPF has been committed to supporting initiatives, education about psoriatic disease, and research efforts to find a cure.

The NPF provides information that helps people become more knowledgeable about psoriatic arthritis, including how it’s treated and what day-to-day life is really like. They also offer resources for handling workplace discrimination and applying for disability if your symptoms leave you unable to do your job.

The NPF’s Patient Navigation Center offers free assistance for people with psoriatic arthritis and their loved ones. This resource can be used to answer questions that may arise, from finding a rheumatologist to resolving insurance issues — and more.

Through their One to One program, the NPF also offers to connect you with another person who understands exactly what you’re going through by either phone, email, or text. You can also volunteer to become a One to One mentor to others who are living with psoriatic arthritis.

The NPF supports research to find a cure for psoriatic disease and optimize the health of everyone living with it. They host a number of community events to connect people locally (or virtually) while raising funds to support these initiatives.

You can follow the NPF on:

  • Facebook
  • Instagram
  • X
  • YouTube

Psoriasis and Psoriatic Arthritis Alliance (PAPAA)

The PAPAA is a United Kingdom–based charity founded in 2007 to empower people living with these conditions, as well as their loved ones and healthcare providers. By joining together, everyone will be better able to understand and manage psoriatic disease.

The PAPAA supports research into the causes, prevention, and management of psoriasis and psoriatic arthritis and encourages their community to get involved.

Along with educational materials, the PAPAA offers a variety of unique resources, including:

  • Symptom checker
  • Educational downloads
  • Pictures of psoriasis and psoriatic arthritis
  • Educational videos?

You can also join the PAPAA Forum to ask their community of people with psoriasis or psoriatic arthritis questions or share your opinions and experiences with the group. Create a free account to gain access to everything the PAPAA offers.

You can connect with the PAPAA on the following platforms:

  • Facebook
  • Instagram
  • Threads
  • Pinterest
  • TikTok
  • YouTube
  • X

Resources We Trust

  • Mayo Clinic: Psoriatic Arthritis
  • Arthritis Foundation: Social Support for Psoriatic Arthritis
  • National Psoriasis Foundation: Living With Psoriatic Arthritis?
  • American College of Rheumatology: Tips for Managing Psoriatic Arthritis
  • Cleveland Clinic: Ways to Prevent Psoriatic Arthritis Flare-Ups

Alexa Meara, MD

Medical Reviewer

Alexa Meara, MD, is an assistant professor of immunology and rheumatology at The Ohio State University.?She maintains a multidisciplinary vasculitis clinic and supervises a longitudinal registry of lupus nephritis and vasculitis patients. Her clinical research is in improving patient–physician communication. She is involved in the medical school and the Lead-Serve-Inspire (LSI) curriculum and serves on the medical school admissions committee; she also teaches multiple aspects of the Part One curriculum. Her interests in medical-education research include remediation and work with struggling learners.

Dr. Meara received her medical degree from Georgetown University School of Medicine in Washington, DC.? She completed her internal medicine training at East Carolina University (ECU) at Vidant Medical Center in Greenville, North Carolina, then spent two more years at ECU, first as chief resident in internal medicine, then as the associate training program director for internal medicine. She pursued further training in rheumatology at The Ohio State University in Columbus, completing a four-year clinical and research fellowship?there in 2015.?

Kerry Weiss

Author
Kerry Weiss is a New York–based freelance writer, editor, and content strategist specializing in health and wellness. She has contributed to a variety of online publications, including Healthline, WebMD, Sharecare, Twill Care, and What to Expect.
EDITORIAL SOURCES
Everyday Health follows strict sourcing guidelines to ensure the accuracy of its content, outlined in our editorial policy. We use only trustworthy sources, including peer-reviewed studies, board-certified medical experts, patients with lived experience, and information from top institutions.
Resources
  1. Psoriasis Statistics. National Psoriasis Foundation.
  2. About the Arthritis Foundation. Arthritis Foundation.
  3. About. American College of Rheumatology.
  4. About CreakyJoints. Global Healthy Living Foundation CreakyJoints.
  5. About GHLF. Global Healthy Living Foundation.
  6. About Us. National Psoriasis Foundation.
  7. About PAPAA. Psoriasis and Psoriatic Arthritis Alliance.
xxfseo.com